Parents, do you ever get the feeling that you are becoming exactly the type of parent you swore you would never be?
Whether it be a helicopter parent, a parent who yells more than she’d like, a parent who loves the digital babysitter – or even a parent who can classify himself as all three – do you ever feel like these are the things you were trying so desperately to avoid?
For me, it’s the helicopter parent scenario. While I don’t think most people would consider me overly protective and afraid to let my boys try new things, there’s a few people who I am sure cringe when they see me coming.
Allergy induced anxiety
My oldest son has an allergy to peanuts and dairy, another allergy to cats and dogs (and possibly bunnies and all other furry animals), as well as super sensitive skin, eczema, and asthma. While I am fairly relaxed about all these things in our own home because we have just learned how to live our lives in a way that keeps him safe and comfortable, I am quickly learning that I take that level of safety and security for granted.
The second Elijah steps out our door I have no control over the things he is exposed to, and try as I might to explain all the things that might cause a significant threat to his health, there’s just too many for a quick two minute conversation. I’ve thought about making laminated flash cards, but by the time I was done providing answers to all the frequently asked questions I would have a pile two-inches high. When he was two, I did put stickers on his front, back and arms at a large extended-family function that said “Please don’t feed me. I have allergies.” That seemed to work, but I doubt when he’s six he’ll want to wear those stickers.
Thankfully, as he has grown older he has also gained a better understanding about the things that may hurt him, or make him sick. He’s very quick lately to tell me “Cheese is yucky, I’m allergic to cheese,” and “Ezra (his younger brother) drinks cow’s milk, but cow’s milk makes me sick.” However, he has also told me, “Peanut butter is yummy, I love peanut butter.” He’s talking about soy butter of course, which is what we serve at home and what everyone is served at daycare. Soy butter and peanut butter look a lot alike, however, which is why I think perhaps some of his daycare friends call it peanut butter and where Elijah also learned to call it peanut butter.
This is terrifying. We have worked very hard to correct him because if he were to go somewhere and an individual heard Elijah say he liked peanut butter, why would they question whether or not he could have some.
Things we didn’t know, and maybe you don’t either
The soy butter confusion aside, Elijah remains pretty good about telling you if he doesn’t feel quite right, but he can’t always reliably tell you exactly why he doesn’t feel good. So, if you don’t have a child with asthma, you won’t know that after Elijah and your child have stopped playing wildly like a bunch of sugar-crazed monkeys and they are sitting down to have a snack or colour a picture – he may start to cough, and he won’t stop quickly. He’ll cough, and cough, and cough. You’ll give him a glass of water, but it won’t help much.
That’s asthma. That’s his body’s way of trying to recover from the fast-paced activity he just participated in. He requires a puffer to help slow the coughing and should be monitored until the coughing stops.
Or, if you have pets in your house and Elijah comes over, within an hour or so his nose will turn into a tap that has been left on. It doesn’t matter if the pets are currently outside or if you vacuumed that morning. Did you wash your couch cushions, throw pillows and blankets? Did you wipe down your floors, baseboards and walls? What about your stove and refrigerator, did you pull them away from the wall and vacuum up the hair that might have found its way under there? Of course not, and I wouldn’t have expected you to prior to our visit either.
We give Elijah allergy medication whenever we go to a friend’s place if we know they have pets – which for us, is just about everyone. We don’t know very many people who aren’t pet-lovers, ourselves included. We own a lab-shepherd mix named Olive. Olive was part of our family prior to Elijah’s arrival and she used to come inside during the more inclement weather. Unfortunately she now has to live outside, year-round. Whether it’s plus 30 or minus 30, Olive needs to live outside.
Accidents happen
Elijah’s skin is very sensitive to fragrances and different soaps. Once, his daycare class made slime. This activity was a huge hit with the kids, I was told, and because of wheat allergies (other children – thankfully that is one thing we don’t struggle with) the kids can’t play with home-made play dough. So, slime is an appropriate alternate sensory activity.
We picked Elijah up after the day of slime and noticed three very distinct stripes on his face. Through several conversations with the daycare administrator and the two teachers in his room we discovered that laundry detergent had been included in the slime recipe.
As soon as I learned this, the lights came one and I was nearly certain I understood where the marks on my son’s face had come from. From birth we have had to use a gentle, hypo-allergenic laundry detergent on Elijah’s clothes. When we tried a lightly scented version he broke out in a rash from the neckline of his t-shirt to his toes. So, if he had direct exposure with a regular laundry detergent, his reaction would definitely be worse. And it was.
Elijah suffered what appeared to be three very mild chemical burns on his face caused when he wiped his own fingers across his face after, or while, playing with the slime. Because Elijah also has eczema that is worsened by the dry winter air, his skin was already dry and cracked, further increasing the exposure to the laundry detergent chemicals.
So, as you can see Elijah is a bit of an accident waiting to happen. I doubt anyone we know or trust would intentionally hurt Elijah, but it is quite possible they wouldn’t know what to do if he was having an allergic reaction or asthma attack.
Have any advice?
Any of you seasoned allergy or asthma parents out there, feel free to provide me with some feedback about how to cope with my son’s medical concerns when he’s in school. Thankfully he has one more year before Kindergarten, which means he will be at home or at daycare with providers we have worked with over the last nine months on allergy and asthma awareness. I can’t help but dread Kindergarten when we’ll have to do this again with a whole new set of teachers and administrators.
Currently, he’s enjoying a week of Vacation Bible School at our church. Most parents have no anxiety about sending their kids to VBS. I do. While I am grateful to have people at the church who know us well and love Elijah and are looking out for him, it’s hard for me to trust that he’ll be okay. It’s also hard for me to not feel bad about the fact that my son is eating plain crackers while the other kids are eating cheese, fruity yogurt, and cookies with icing. Elijah attending VBS was a very last minute plan, so now that I know there aren’t many safe options for him, for the rest of the week I will be packing him his own safe snack.
We do this frequently. If we whip out our own cupcake at your child’s birthday party please don’t think we are snubbing your food. We only wanted Elijah to be able to enjoy a piece of cake along with his friends without limiting what kind of birthday treats can be served. This way if your child’s favourite birthday treat is ice cream cake, have the ice cream cake. Elijah will always have his own safe option.
There’s just so much people don’t understand about allergies – and why would they if they haven’t been affected? I certainly wouldn’t have known much about a dairy allergy or a peanut allergy if Elijah hadn’t have been affected. I also didn’t know about the asthma induced coughing spells until our paediatric allergy and asthma specialist kindly smiled at me and said, “those coughing spells, that’s asthma.”
Aside from his allergies, Elijah is just like any other four-year-old kid. He loves to run and play, he enjoys puzzles and games, he’s into dinosaurs and PJ Masks presently, he pushes boundaries and refuses to eat potatoes. He also loves jumping on the trampoline, as well as helping me in the garden and when I’m baking.
What you can do
So, what can a non-allergy family do to help ease the anxiety felt by an allergy family? Ask questions, want to understand, and really listen. For example, one of the largest misconceptions about Elijah’s dairy allergy is that he is lactose intolerant. Elijah is allergic to the protein in dairy, whereas people who are lactose intolerant have trouble digesting lactose, a milk sugar. Consuming dairy does not give Elijah digestive discomfort, it causes him to vomit and break out in uncomfortable hives from head to toe. Lactose intolerance, while for sure a discomfort, is not the same as a dairy allergy.
Sometimes life throws you curve balls, and childhood allergies and asthma is certainly ours.
**This was originally published as a column in the Mile Zero-Banner Post, on June 13, 2018.**